“His skin started peeling off 15 days after he was born and then new skin began to grow very thick. It hardened and turned black, we had no idea what to do about it. No one helped us.
“By his fifth birthday he began to say his body was in pain and he couldn’t walk. He’s never really been able to explain anything to us either. He is only able to inform us when he’s hungry or wants to use the toilet. He used to sit and cry but we didn’t know what was hurting him or how to help him. Any young child would see him and run away crying. It was hard for him and us to watch. By age six, the condition had left him unable to walk, and so he has never been to school,”Nanda, his father told MailOnline. When they eventually found out what was wrong with their son, Nanda was told the treatment was too expensive to cover with his £44 a month wage, and so they could do nothing but watch him suffer. ‘We took him to a few doctors in our district but we were told that treatment was costly and only available in private hospitals. We did not have enough money and had no choice than to keep Ramesh home and do our best,’ he said.
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